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Hacking Health in Hamilton Ontario - Let's hear that pitch!

What compelled me to register for a weekend Health Hackathon? Anyway, I could soon be up to my ears in it. A pubmed search on Health Hack...

Friday, October 25, 2019

Axe the fax

From the Globe and Mail December 2018 Health reporter Andre Picard:
https://www.theglobeandmail.com/canada/article-the-british-are-axing-the-fax-will-canada-follow-suit/

It’s not often that a seemingly mundane ministerial announcement reduces one to jealous tears, but this one fits the bill.

On Sunday, Matt Hancock, the British health and social care secretary, banned the purchase of facsimile machines by the National Health Service effective Jan. 1, 2019. He also ordered that faxes be phased out completely in hospitals and physicians’ offices by April, 2020.

Oh, but how Canada – a country even more in the poisonous grip of the fax than Britain – could use this common sense initiative.

“We don’t underestimate the enormity of the challenge to remove all our machines in such a short time, but we cannot afford to continue living in the dark ages,” Mr. Hancock said in the release.

Amen.

In July, the Royal College of Surgeons released a report that revealed the NHS, the country’s publicly-funded national healthcare system, had more than 8,000 fax machines in service. A group of hospitals in Newcastle Upon Tyne had a mind-boggling 603 facsimile machines in use.

To cap it all off, the NHS had the dubious distinction of being the largest purchaser of fax machines in the world.

Richard Kerr, chair of the committee that prepared the report called the situation “farcical” and called on government to invest in 21st century technology.
The government actually listened.

In addition to the fax ban, there are two other important aspects of Sunday’s announcement. Come 2020, communication will be by secure e-mail or apps and, just as importantly, all communication technologies will have to meet a standard that ensure that they can talk to each other across organizational boundaries. 

There will also be some additional money for hospitals and physicians to replace their fax machines – £200-million (about $340-million) – in addition to what the NHS is already spending on IT. 

But we do know that the fax machine is still ubiquitous. A 2017 survey found that two-thirds of Canadian physicians use the fax as their primary means of communication with other health care professionals, such as doctors, pharmacists, and hospitals.

So why do we continue to use technology that is almost universally acknowledged to be absurdly outdated?

Some claim that the fax is more secure than alternatives like e-mail. Our privacy rules also consider the fax the safest form of communication. That’s simply not true, especially with readily available encryption. The continued use of fax machines is bad for privacy and bad for patient safety.

A principal reason the fax endures is habit. Change is always slow in the ultra-conservative health system, especially when it costs money.

But the single biggest impediment to banning the fax is that the computer systems and electronic health records that we have are rarely able to communicate with each other. Interoperability has not been a priority and that has left us beholden to largely paper-based technology.

Many will look at what is going on in Britain with envy. But, in true Canadian fashion, we will find countless excuses for not doing the same.

Expect to hear that, because Britain has a centralized national health-care system, ministerial directives are a lot easier to issue and implement. There is some truth to that; Canada’s 14 ministers of health can barely agree on the time of day, so an initiative to ban fax machines may be a stretch.

But we shouldn’t forget that Britain’s “axe the fax” campaign was a grassroots initiative. The College of Surgeons gave the initial push by providing data that generated a lot of media coverage and made it easy for government to act.
There were also hospitals that showed impressive initiative. For example, the Leeds Teaching Hospitals NHS Trust committed to eliminating its 340 fax machines within three months, sending a message to others that it was doable.
There is no doubt that fax machines can be eliminated, and they must be, sooner rather than later. The only question is who is going to show leadership? What health care organization, hospital, or politician is going to make axing the fax their legacy and drag Canada out of the dark ages?

Tuesday, August 27, 2019

Happy Birthday JMIR: Call for Papers 20th Anniversary Issue

Happy Birthday JMIR: Call for Papers 20th Anniversary Issue

20yr JMIR

Happy Birthday: 20 Years of JMIR

In August 1999 we published the very first issue of the Journal of Medical Internet Research (JMIR), pioneering a new type of journal for an emerging field – originally, JMIR's scope was the use of the Internet and related technologies as an enabler and infrastructure for health innovations, although todays' scope of digital medicine or digital health goes well beyond "the Internet", and includes emerging technologies such as 3D printing, games, wearables, and home sensors, etc. (all technologies that would be unthinkable without the Internet as infrastructure foundation). 
The field went through several name changes – what we first called “cybermedicine” was later called “eHealth” (electronic health), then came “cHealth” (connected health), and these days people sometimes use “digital health” or “digital medicine” (despite Twitter length restrictions) – but the underlying ideas remain the same: The use of information and communication technologies and the web helps to empower patients (not least through peer-to-peer communications), provides a platform for communication, clinical information and telemedicine (these days often through mobile devices), and revolutionizes information access and medical education [1]. While most medical informatics journals focused on clinical informatics, hospital IT and electronic health records, JMIR recognized the ubiquitous and pervasive nature of emerging technologies outside of traditional health care settings.  

We were not only innovating on content, but also on form. And as we wrote 20 years ago, “As publishers of a journal about the Internet, we are also dedicated to using and experimenting with the Internet as a medium itself.” [1] – and experimented we have: We were the first open access electronic-only journal in medical informatics or even medicine (pre-dating BioMed Central and PloS), we were the first to mine “tweetations” from Twitter to calculate what is now known as “altmetrics”, we were the first journal offering a fast-track payment option for guaranteed decision making within 3 weeks, we experimented with web archiving cited webpages (WebCite), we were one of the first journals openly crediting reviewers by name (and now rewarding them with Karma credits), we pioneered new ways of knowledge dissemination through social media and cofounded TrendMD, and we continue to experiment with open peer-review, preprints, registered reports and even crowdfunding.

Today, JMIR Publications publishes 30 journals, has a modern Google-like office at Toronto’s waterfront, has a staff of 20, and was just named one of Canada’s top 500 companies.
Four of our journals have an impact factor (ranging from 3.2 to 5), and are ranked among the top 8 medical informatics journals.

20th Anniversary Special Issue – Call for Papers 

To celebrate our milestone and exit from the teenage years, we are preparing a special issue, to be published at the end of 2019. This special issue will consist mainly of invited papers written by leaders in the field, but we are also soliciting papers from the academic community. 
This will be an unusual high-profile issue that will be widely disseminated with press releases and as a special print publication at conferences.
We specifically encourage papers (reviews, viewpoints) that comment on major developments from the past 20 years or provide an outlook on the possibilities or challenges of digital health for the next 20 years. We also welcome high-quality original research or systematic reviews. Possible topics for viewpoint papers or reviews could be “Where will we be in 20 years – what will health care look like in 2039?”, or “What is the biggest achievement or research breakthrough in the past 20 years?”. 
We would like to have the submission by September 15, 2019, although we may be able to make arrangements to extend this deadline. Contributions will be peer-reviewed. 
Potential authors interested in submitting should file a pre-submission enquiry by sending an email with the subject line “20th anniversary article proposal” to ed-support@jmir.org outlining their paper idea (title and abstract). 
All article processing charges will be waived for papers appearing in the 20th Anniversary Issue.

Invited authors (as of August 21, 2019):

Alex Jadad From a digital bottle: A message to our selves in 2039
Enrico Coiera The last mile: The challenge of bringing digital health into real-world settings
Paul Wicks The rise and fall of online patient communities
Bertalan Mesko The art of medicine in the era of artificial intelligence
John Powell Trust me I’m a chatbot: Why AI in healthcare won’t pass the Turing test
Danny Sands Title TBD
Dave DeBronkart Open access as revolution: Knowledge alters power
Susan Michie On the dimensional structure of engagement with digital behaviour change interventions (DBCIs): Psychometric evaluation of the ‘DBCI Engagement Scale’)
Jeremy Wyatt Title TBD
Tricia Greenhalgh Infrastructure revisited: Ethnographic case study and (re)theorisation of the ‘installed base’ of healthcare IT
   
John Torous
A systematic review of smartphone apps for prodromal and early course psychosis and schizophrenia
Beyond impact factor: JMIR's 20 years of engaging and encouraging high-quality digital health research from diverse authors
Bradford Hesse The internet’s role in solving the last mile problem in medicine
Kenneth Mandl TBD
Helen Christensen TBD
Laurie Buis Implementation: The next giant hurdle to clinical transformation
Qing Zeng, Stuart Nelson Will AI translate big data into improved medical care or be a source of confusing intrusion? – A discussion between a physician and a medical informatics researcher
Rita Kukafka Digital health citizens on the road to the future
Renato M.E. Sabbatini Federated intelligence, the internet and medical decision-making
Ricky Leung TBD

   

Call for Video Submissions

Alternatively (or additionally) we are inviting short video messages from researchers, authors, editors, and reviewers, commenting on the impact of JMIR on the field or you personally, or just wishing us happy birthday. We will be accepting video clips recorded by you, but we are also happy to have an interview with you over Skype. If you do not have time to write an article, providing comments in a short video or interview might be a good option. Snippets from the videos will be distributed through our social media channels (such as Twitter and YouTube), and some might even be published in the 20th anniversary theme issue. You can reflect on (or we can interview you) about your own research, or on a topic of your choosing. 

Submit a Quote

As a final option we are soliciting succinct quotes from researchers and the public which we may use in an editorial for the anniversary issue. Authors of these quotes will be credited and we may use their headshots as well.
We are seeking your 1-3 sentence answers to the following questions:

  • What significant developments happened in the past 20 years, e.g. what is the biggest achievement or research breakthrough in the past 20 years?


  • Where will we be in 20 years – what will health care look like in 2039?

If you want to contribute in this part of the anniversary issue, please answer at least one of these questions in this form before Sept 15, 2019.
If you have more to say about this then please consider submitting a full viewpoint article instead (see above).
References

1. Eysenbach G. Welcome to the Journal of Medical Internet Research. J Med Internet Res 1999;1(1):e5; URL: https://www.jmir.org/1999/1/e5 DOI: 10.2196/jmir.1.1.e5.

Thursday, May 30, 2019

Infoway - Patient Scholarships at 2019 Partnership Conference - Apply by June 12!

Patient Scholarships at 2019 Partnership Conference — Apply by June 12!
The 2019 Infoway Partnership Conference is accredited as Patients Included, and we are committed to ensuring that patients have a strong presence. Patients, caregivers and family members are invited to apply for scholarships to attend the conference on November 12-13 in Ottawa. Applications close June 12.

Registration for the conference is now open and discounted rates are in effect.

The Delta Ottawa is our designated venue for the Conference, and it is now taking reservations. Book directly with the hotel today by calling 1-888-236-2427 and quoting Canada Health Infoway Partnership to take advantage of the special rates. Delegates may also take advantage of discounted flight and train rates from Air Canada, WestJet and VIA Rail. To access the discount codes, please visit our website.

Wednesday, November 7, 2018

eHealth Ontario Watch how access to diagnostic images and reports benefits health care providers and their patients

Digital Health Success Stories
With the recent launch of the Diagnostic Imaging (DI) Common Service, health care providers can now view diagnostic images and reports performed at facilities across the province, in one place.  In August, the service was made available to all authorized users in the Greater Toronto Area as well as in northern and eastern Ontario through the ConnectingOntario ClinicalViewer.  It’s also now available at two hospital organizations in south west Ontario, providing additional patient data to ClinicalConnect users who currently see reports and images and produced within their own region, and is being rolled out to more sites in the coming months. Thanks to this integration, health care providers can now obtain a more complete picture of their patient’s health, regardless of their location.

 
Watch the video above to see how health care providers like Dr. Koff benefit by having quick access to their patients’ diagnostic images and reports. This helps to eliminate the need for patients to carry around CD’s containing their DI information to specialist’s offices. It also eliminates the need to mail or fax test results, and the costly duplication of scans. Most importantly for patients, this network allows specialists at one facility to access images performed at other locations, allowing for more informed, timely medical decisions.

Help Us Share This Story
Help others see firsthand how our work today is enhancing delivery of patient care in Ontario. Our mission is to foster an electronic health care system that puts the patient first, by leveraging existing systems and building new ones to connect health care providers with their patients' medical information.
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Friday, August 10, 2018

Korean medical TV dramas III

Life

Korean TV darma - Life

There are now many Korean dramas on Netflix. Dramafever or Viki carries many and we have found they often appear there first then end up on Netflix if they are popular. Just because they are on Netflix doesn't necessarily mean they are great or anything but indeed some are very good. The most recent medical drama is called Life.  This follows several very good Netflix posted Korean dramas that were non-medical, but are equally as enthralling. I am thinking of  Mr. Sunshine, Live, Prison Playbook, and Hyeori's Bread and Breakfast.

TV dramas about hospitals probably started out as soap operas. As a kid the soap opera General Hospital appalled us for it's lack of general intelligence and fake acting. Korean epic medical dramas, to my mind starting with Hur Jun in 1999 are extremely interesting to watch - and now that I think about it - better than reading novels. Or, maybe that is an excuse for how much time I have sunk into watching Korean dramas. In fact, I mostly read these dramas anyway because without the sub-titles I am lost. I do hear and know a lot of Korean spoken language and I understand a lot about Korean culture, but it is not a language I am fluent in. For example, sometimes, I can watch a French movie and for the most part can understand what is going on, even without sub-titles. With just French sub-titles I would have an even better understanding.

Life has a well recognizable cast of excellent actors, as they - "star studded cast". I would say it is a powerful cast which would most surely ensure the success of the drama. In fact, the Wikipedia article on Life says for a cable TV drama, the ratings are very high. Anything over 10% is high, and that is very high for cable TV. The most prominent actor is the lead, Lee, Dong Work, who we saw not too long ago in Doekebi ( 도깨비 or English translation - Guardian: The Lonely and Great God ).  He is as good looking as a model, and as the secretary to the Hospital CEO, who has a crush on him in the drama says; "Looks like a Greek God", which in a sly way is referring back to his role as "The Grim Reaper" in Doekebi (도깨비).  Followers of Korean dramas often see these kinds of comical references of actors back to previous roles in famous dramas. One scene we saw recently watching Yi San again were two palace maid friends who said "I think we have met before in a past life somewhere". "Yes, I get that feeling too", which is an obvious reference for the audience who knew those two as not so friendly adversaries in the superb medical drama Dae Jang Geum. Speaking of 'having crushes", any Korean drama would not be worth it's salt without a romance plot or twist and turn, and now into episode number 5, something appears to be developing. Though I also heard that many people were enjoying this medical drama because it lacked a romantic focus.

There is an eHealth reference in Life which startled me for several reasons. The CEO needs to find a way to generate revenue in the hospital, which is a non-profit teaching hospital so that is kind of hard to do. He decides to create a subsidiary non-profit pharmacy that would sell nutritional supplements and all his physicians under this command would be asked to help sell and promote them - a kind sole sourcing monopoly. He finds a supplement company willing to sign on as partners but only in exchange for them funding a technology that the hospital needs.  We later see a scene where the nurses start using RFID bar code readers to interrogate signals and bar codes on patient wrists, medical bottles, inventories, and charts. It is the perfect way to reduce medical error. In early scenes there was a lot of drama over physicians in cancer wards covering up for medication errors that killed a patient. The CEO asked for a solution for reducing the errors but the physicians did not think of the RFID solution. It was the brilliant young CEO who was parachuted in from a subsidiary company that efficiently ran warehouse and product shipping to discover the idea of using RFID and getting his new pharmacy partner to foot the bill. All seems really good with RFID technology until the staff learn that in exchange for the benefit of the technology they now have to be salespeople for the nutritional supplements like whale oil, shark oil, etc, substances most scientifically trained specialists don't give the light of day to. From my own studies of RFID technology, the CEO is right. They do reduce medical errors and improve efficiency.  The technology, as I understand it, is also a bit expensive to implement, and maintain securely. The other thing that startled me is that RFID technology like this is at least a decade old, but really looks new and revolutionary in this drama.

There is another eHealth component in episode 7 or 8 where the CEO of the University Hospital meets a high powered CEO of an electronics company and they talk about starting a health app. They joke that the more people follow their blood pressure on the app, the more worried they will be about their health conditions and thus more prone to book appointments at the hospital and thus more money in the coffers. Thus are the benefits of private healthcare.

The main plot of this drama is how business intelligence pits its wits against medical staff in a top level (big 5) university teaching hospital by applying an all business efficiency and revenue generating model to public healthcare. I don't know all the reality of healthcare in Korea but the trend appears to be towards more privatizations. This drama explores that idea in the extreme. It always makes me think of the journal article written by the McMaster University physician and one of the founders of evidence-based medicine, Dr. Gordon Guyatt, in which he wrote that for profit healthcare is hazardous to your health. That was not just his opinion, but the results of the meta-analysis and evidence-based literature research. In Life, the CEO is played by Cho Seung Woo, who was brilliant in the 2017 drama Stranger (which was written by the same writer as Life - Ms. Lee, Soo-Yeon). Indeed the context for the drama, though not based on reality but is fiction as stated in the intro - has a basis in reality - rural Korean public hospitals being shut down by greedy profit seeking interests.

The focus of interest in the drama is whether or not the CEO of the hospital, who is just following the orders of the Chairman of some huge conglomerate to generate revenue in the hospital after it was bought out ( and don't ask me how a non-profit university teaching hospital can be bought out), is the most unethical, cold hearted greedy capitalist to ever walk the face of the earth, or whether he has inside a human heart capable of compassion and actually being able to listen to the over worked, over stressed and over resourced medical staff, who are just about to go out on strike as a protest to the CEO decision to cut and move out  to the rural areas outside Seoul 3 departments that are losing money. As an audience we start out believing he is a "malicious jerk" to quote the sub-title translation (and I think I even know how that is said in Korean) but through the sympathetic understanding of some of the medical staff and our own inner doubts, we start to believe that the CEO is a human being, who will eventually "pivot" and be able to harmonize solutions for all concerned.

What you have to do with this drama is hinge your mind on every spoken word (or sub-title) because the nuance and intrigue comes fast. You also have to pay attention and learn a lot about business, life insurance, and medical diagnosis, all at the same time. That the drama is packed with dense intelligence is all that I can say, which is why it reminds me more of reading a novel than watching a drama. It is not a "vacuum land" where you can passively watch in an empty state on the hope of being entertained. You actually believe that you can learn about how business and healthcare can operate together. These are also universal and extremely important ideas for society, such as should MDs also have MBAs, or is that some kind of oxymoron?

There have been some other medical dramas that have appeared on Dramafever and Viki but I don't think I will go into them in this Korean Medical TV Drama III post. You can discover those on your own. They are not entirely without merit. This drama called Life, however, I think will be well worth your time watching, and we eagerly look forward to see how this one will evolve past Episode 5.